Tuesday, March 23, 2010


The Kid now:

He has very strong lungs. We were told that pretty much no 27-weeker comes home without oxygen, but he came off of all assisted breathing devices at about 35 weeks gestation. Because he was a micro-preemie, he qualified for synagis, a $3000+ shot to protect against RSV. Thank goodness. We don't need any more time in the hospital.

He has bilateral grade II brain bleeds. You can google that if you want to; I choose not to. The docs told us that it meant that it wouldn't be surprising if he had disabilities, but it wouldn't be surprising if he didn't. It's quite likely that he'll have learning disabilities or sensory disorders and less likely (yet still possible) that he'd have cerebral palsy or mental retardation. He had an MRI before coming home from the NICU, and it showed slight damage in one spot in the white matter, which makes CP or MR a bigger worry.

He isn't a great eater. He came home from the NICU with a feeding tube (they said that only about one baby per year comes home with one). His bottle feeding abilities have been a roller coaster, but on the 19th he decided to pull it out. We left it out to give his sore little cheeks a break from the tape, and he's been getting full feedings from the bottle ever since. We may have seen the last of the NG tube. Yipee!

Now you should be up to speed on The Kid's conditions and we can living in the present. Every day has new and wonderful things to share with us, and I'm excited to share them with you!

1 comment:

Katie B said...

It's been a long road, hasn't it. But there's been fantastic progress! Keep it up dude!