It's weird to think that he has spent more than two thirds of his life with a feeding tube of some sort.
From birth to about one month, he had an OG tube (oral gastric, meaning it went through his mouth and into his stomach).
Birth
1 month
From one to almost six months, he had an NG tube (nasogastric tube--meaning, it goes from the nose to the stomach).
1 month
1.5 months
2 months
2.5 months
3 months
5 months
6 months
9 months
10 months
11 months
12 months
Happy birthday! So far, this is the only birthday where he could have cake.
14 months
15 months
16 months
19 months
19 months
20 months
Almost a month later, exactly two years ago today, he had surgery for his g-tube.
21 months
24 months
3 years 8 months--Today!
What an evolution! And what a roller coaster! Thanks to the tube, Caleb is able to enjoy food for the first time in his life because we don't have to pressure him to take just one more bite. He still doesn't eat enough to grow so we still depend on the tube quite a bit, but what he does eat, he enjoys. And that counts for a lot! Most days he eats enough orally during the day that we don't have to tube feed him until bed time. He gets 13oz of half formula (EO28 Splash) and half rice milk using the feeding pump at 65ml/hour while he sleeps at night. We're hoping the days of projectile vomiting are over--he doesn't throw up any more unless he's sick or really scared (like when I put him to bed in an unfamiliar place...that invoked vomit). His (and our) quality of life is on the upswing, and we're hoping it stays that way!
1 comment:
I'm loving the evolution of Caleb pictures! :) Kal is too.
I remember when you were feeding Caleb food smothered in butter... and french fries and milk shakes.
Good to hear that things are relatively smooth food-wise for Caleb lately. I bet that's a relief to have a system that works.
Post a Comment